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Showing posts from June, 2023

"Thriving with MS: Embracing Life's New Normal"- MS and Me2 Part II "The Meds"

 Blog 3:  "Thriving with MS: Embracing Life's New Normal" Part II Recap: Blog 2 talked about making life changes and adjustments in order to live with the disease; "The Vest". Todays about discovery also; discovering your medications ('MEDS") to help prolong your quality of life with the disease. After taking the journey of trying to explain my symptoms, so many to put into words, I had to have an MRI (of my Brain and Spine), and a Spinal Tap in order to make the diagnosis. My next step in this process was to partake in the best practice "Meds" available, or as I've learned to say, "the trial-and-error meds". Some meds are injections (frequency varies), some are pills and last, depending on how long it has taken for you to be diagnosed, and the severity of the symptoms, the last is intravenously. The crazy part about all of this is although you are looking to extend your quality of life, some "Meds" do just the oppo...

"Thriving with MS: Embracing Life's New Normal"-MS and Me2

  Blog 2: "Thriving with MS: Embracing Life's New Normal"   Recap: Blog 1 talked about living with an unknown disease to me and making life happen until it had a name. Today its about discovery. Discovering ways to live with it and live well. The Vest... In the military and on my security team, we learned to live with a vest, it was the very item needed to protect many of the vital organs that keep us alive int he vent of a battle. My vest has changed; my vest is one of gel cold packs that kept me cool in the summer months. It was a lifeline that allowed me to continue to enjoy the summer and its heat without triggering an interruption to my nervous system. This vest was one that aided me in my workouts (walk first) and helped me in making others aware of a very strange disease that can, if you let it, disrupt your quality of life. Let's just say the vest was an evangelism tool. (Prompted questions) The Vest.

"Unmasking MS: Navigating Life's Unexpected Challenge(s)"

"The Unseen Battle:  Living with an invisible disease. In this Blog, I want to shed some light on the daily struggles of living with Multiple Sclerosis also known as ( MS ), a disease often hidden beneath a facade of normalcy.  Join me, a man, a husband, a father, a veteran, a grandfather and business owner as I attempt to peel back the layers and share my personal experiences, triumphs and setbacks in navigating life in each of these areas with an invisible illness. Together let's raise awareness, break stereotypes and build a supportive community for those facing similar challenges.  As we unmask (mainly me sharing with you until you feel comfortable to share) I want to ensure we first address the dark cloud hiding the sunshine in the title of my Blog "Unmasking MS: Life's Unexpected Challenge (s).  MS, now that I have come to know the name of the invisible disease that had covered my sunshine like the weather sometimes does, I look back now on why a group of peop...